HalfPintOG
New member
This is going to be long and I apologize, but I just don't really know where to start without starting at the beginning. Maybe grab some popcorn or an energy drink. I am a 71 year-old female. Ran a successful business for over 25 years, exercised religiously, and never weighed over 110# @ 5'2". Six years old I had my first kidney stone. Passed it while driving to the ER screaming all the way. About three months later, got another one. Stayed home for this one as I knew the routine, but Dr decided to do an ultrasound as I had had several kidney infections that year. Ultrasound showed I had quite a few kidney stones, and some of them were fairly good sized with the queen bee being at 9MM. Two large to safely pass. They took me in to blast them, which was going to take approximately 40 minutes to an hour. 2 1/2 hours in my husband said I need to know what's going on. Connected him with the doctor doing my surgery and she said we ran into complications. My kidney was being strangled by veins and arteries that had grown and attach themselves to it. Said it had probably been going on since birth. They were trying to peel back as much as they could. Could not get the big one because my liver was so enlarged. Stopped all coffee and caffeine. Kidney infections continued. New Dr discovered kidney wasn't draining completely, ureter was partially blocked. Had another surgery to place temporary stent. Kept 6 weeks and removed. Infections started again. Put in nephrostomy bag. Had to have replaced every 3 months. Had for over a year. Also developed 14" blood clot in left thigh. In hospital for 2 weeks on IV blood thinners. Said best to amputate. Hubby spent all next day on phone and found a doctor that said to bring me right in to the hospital in another city. Roto-Rooter it out, place a permanent stent a year on Coumadin. Still have my leg. Back to kidney, during a nephrostomy back change i contracted a very bad bacteria called pseudomonas. Back into the hospital for 10 days on 24 hour IV drip. Then home on IV drip for another 10 days, but only an hour a day. I am getting weaker and weaker and I just want to be done. Still have nephrostomy bag and then I get Covid.
There is water built-up around my heart. They do a neuro stress test on me and I have the worst reaction they have ever seen. If you've ever had one of these, you know that it cannot be stopped, it has to run its course. My heart went into a fib, I was sweating profusely and almost seizing. Once it was out of my system, my doctor told me I am just taking you into surgery, if you need a stent, I'm just going to do it. I said please just let me die. I can't do this anymore. Then I was asleep. Heart turned out to be fine. It was just protecting itself from all my body has been going through. I went to who was willing to try to repair my ureter. There was a lot of scar tissue that was blocking it, he said I have one chance and if it doesn't work, we have to remove your kidney because it's doing more damage than GOOD. It worked. He looked at the kidney stone and said that they could not get to it because of the liver so it was time to address that. He said the 9 mm kidney stone was like a bomb waiting to go off. I have stage 4 non-alcoholic fibrosis. I am one step away from cirrhosis. They've taken 18 bottles of blood from me and run every possible test on it. Still can't pinpoint exactly what the problem is, but it is looking like some kind of immuno disease. Great. We all know there's nothing you really can do about that. I have to have a liver ultrasound and biopsy done the end of July. So here I am. 100 pounds overweight, week, severe, I wish there was a word stronger than severe to describe my weakness. I also have PTSD and a fear of open places because my balance is so bad and I get dizzy and start to blackout so I have to use a walker. I try to do chair aerobics and a little bit of gardening, but it wears me out so fast. If I have a good day, I will sleep the next two days. Speaking of sleeping, I have had sleep apnea since I was 21 has nothing to do with weight because I was very thin then. I've been on a Sleep Apnea machine for the last 20 years. Doesn't matter, I wake up feeling like I have not slept for days. No matter what I do, I cannot regain my energy level. Started tizepatide I think about eight months ago and have lost 65 pounds. Still feel exactly the same. Still sleep just as much. I'm up to 15 units now and I'm hungry all the time. Do not want to put on the weight that I've lost. Starte MotsC two weeks ago, 5 mg once a week. No change. I thought maybe I could stack it with some Reta , I've done a lot of reading and learning, but my husband thinks it's too dangerous. All I know is I just can't keep doing this. Conventional medicine has not helped me at all. If it wasn't for my husband being proactive, I would be sitting here today with an nephrostomy bag, full of bacteria and only one leg and 125 pounds over weight at least. I just need to get back up on my feet and I think that peptides could help me get there, but I'm just not really sure what to take. Any help is greatly, greatly appreciated.
There is water built-up around my heart. They do a neuro stress test on me and I have the worst reaction they have ever seen. If you've ever had one of these, you know that it cannot be stopped, it has to run its course. My heart went into a fib, I was sweating profusely and almost seizing. Once it was out of my system, my doctor told me I am just taking you into surgery, if you need a stent, I'm just going to do it. I said please just let me die. I can't do this anymore. Then I was asleep. Heart turned out to be fine. It was just protecting itself from all my body has been going through. I went to who was willing to try to repair my ureter. There was a lot of scar tissue that was blocking it, he said I have one chance and if it doesn't work, we have to remove your kidney because it's doing more damage than GOOD. It worked. He looked at the kidney stone and said that they could not get to it because of the liver so it was time to address that. He said the 9 mm kidney stone was like a bomb waiting to go off. I have stage 4 non-alcoholic fibrosis. I am one step away from cirrhosis. They've taken 18 bottles of blood from me and run every possible test on it. Still can't pinpoint exactly what the problem is, but it is looking like some kind of immuno disease. Great. We all know there's nothing you really can do about that. I have to have a liver ultrasound and biopsy done the end of July. So here I am. 100 pounds overweight, week, severe, I wish there was a word stronger than severe to describe my weakness. I also have PTSD and a fear of open places because my balance is so bad and I get dizzy and start to blackout so I have to use a walker. I try to do chair aerobics and a little bit of gardening, but it wears me out so fast. If I have a good day, I will sleep the next two days. Speaking of sleeping, I have had sleep apnea since I was 21 has nothing to do with weight because I was very thin then. I've been on a Sleep Apnea machine for the last 20 years. Doesn't matter, I wake up feeling like I have not slept for days. No matter what I do, I cannot regain my energy level. Started tizepatide I think about eight months ago and have lost 65 pounds. Still feel exactly the same. Still sleep just as much. I'm up to 15 units now and I'm hungry all the time. Do not want to put on the weight that I've lost. Starte MotsC two weeks ago, 5 mg once a week. No change. I thought maybe I could stack it with some Reta , I've done a lot of reading and learning, but my husband thinks it's too dangerous. All I know is I just can't keep doing this. Conventional medicine has not helped me at all. If it wasn't for my husband being proactive, I would be sitting here today with an nephrostomy bag, full of bacteria and only one leg and 125 pounds over weight at least. I just need to get back up on my feet and I think that peptides could help me get there, but I'm just not really sure what to take. Any help is greatly, greatly appreciated.
