Curlygirlie
Explorer
What does your routine look like when dealing with chronic fatigue? Is there anyone in this group who has ITP? Or any other autoimmune conditions?
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Cfids affected my mom. Raynaud’s is something I deal with. Devik’s syndrome runs in my sister. Since I kept coming down with illnesses all the time, I started taking glutathione at 2000 mg, 7 days/wk. Fatigue stayed the same, yet for more than a year I avoided getting sick. In 2010 my mom passed away, and peptides don’t interest my sister at all—she considers herself pretty healthy (that’s her word, not mine). That said, she’s been battling a UTI that won’t clear for over a month, plus recurring kidney stones and anemia so severe she needs transfusions. I should press her about her iron intake.. and a few other things too.Curlygirlie said:
What does your routine look like when dealing with chronic fatigue? Is there anyone in this group who has ITP? Or any other autoimmune conditions?
Ferrous sulfate is what most doctors recommend. But if you're older or have undergone WLS, your stomach acid production is too low for absorption. Polysaccharide iron complex is what's needed instead, and from what it sounds like, she requires more than 1 tab 3x/wk. When I was in need of iron infusions last fall, my hematologist told me to take it mwf alongside at least 200 mg vitamin C per dose. Before that, I had been taking it every day without any C; my 6-month testing is approaching to determine whether I should move up to 2 tabs mwf. My sister doesn't have a hematologist or an endocrinologist, so yearly is the only frequency for checking her iron levels, and that's insufficient. That explains why hers have dropped low enough that transfusions are necessary. And yet, even though she'll seek my input about everyone else, my nursing degrees apparently aren't sufficient for giving HER health advice. It's frustrating. A lot of tongue-biting happens on my end.lessthanhalf said:
Trying to sort out this final piece. When a person's anemia is severe enough that transfusions become necessary, wouldn't it be almost impossible for their iron levels to go unchecked and for no guidance to be given about whether iron supplementation makes sense?